Today, Congresswoman Erin Houchin (IN-09) and Congressman Morgan McGarvey (KY-03) introduced a resolution expressing support for the NICU Baby’s Bill of Rights, highlighting the need for family-centered care, informed parental consent, and improved resources for families with babies in neonatal intensive care units (NICUs).
Each year, over 380,000 babies are born early in the U.S., and many full-term babies with serious health issues also need care in NICUs. These families face emotional, financial, and medical challenges. The NICU Baby’s Bill of Rights aims to improve parent involvement, mental health support, and access to information about their baby’s care and nutrition.
“Families with babies in the NICU are navigating some of the hardest days of their lives,” said Rep. Erin Houchin (IN-09). “NICU parents should be informed and included in every decision about their child’s treatment plan. We want parents to be supported and have a voice and presence in the NICU, including that critical first contact. We hope the NICU Baby’s Bill of Rights will help ensure every baby receives the best care and has a fighting chance at life.”
“My twins spent 99 days in the NICU – my wife and I fought tooth and nail with our insurance company to ensure they got the care they needed. I’m proud to introduce the NICU Baby Bill of Rights with Rep. Houchin to support parents and families as they navigate through one of the most difficult moments of their lives,” said. Rep. Morgan McGarvey. “As a NICU parent, I know how important knowledge is when advocating for your family’s care.”
Key Provisions of the NICU Baby’s Bill of Rights Resolution:
- Promotes Family-Centered Care: Calls on hospitals to establish policies that prioritize parental presence, integration, and collaboration in NICU care.
- Strengthens Informed Consent: Encourages hospitals to provide families with clear, comprehensive information about treatment plans, infant nutrition options, and potential risks.
- Supports Mental Health for Families: Emphasizes the importance of peer support programs, counseling services, and mental health resources for parents and caregivers.
- Improves Discharge Planning: Ensures that families receive personalized guidance to prepare for their child’s transition from the NICU to home.
The NICU Baby’s Bill of Rights is supported by top child health and family advocacy groups committed to improving care for premature babies and those with serious medical needs.
